So for the past couple of years, my pain has been steadily increasing. About 1 month ago, I got really, really sick all of a sudden, and realized I had a hard mass in my right abdomen, just slightly above and lateral to my belly button. I had gone into work, and was sent home because I was so unwell. There was no way I would be able to see my family doctor, so I went to a walk in clinic near my house. Once I got there, she did a brief exam and sent me straight to the nearest ER, thinking I had an acute case of appendicitis. Once there, instead of waiting for hours before seeing a doctor, I had a private room, changed into a gown, and was seeing a doctor within 20 minutes.
After the med student had made his assessment, his supervising doctor came in to check me again. She was dead set that I must have PID (I don't, and I knew that, but she didn't want to listen), gave me the most painful internal exam possible, and left. The lab tech came in for 14 (yes, I counted) vials of blood, and a nurse came in regularly to test my vitals. After waiting for the blood work to come back, they realized that I did not have appendicitis, and was given a requisition for an ultrasound. She had no idea what was wrong with me. So I went home for the night.
The following morning, I got a call from the radiology department at the hospital to come in for an ultrasound. Usually my ultrasounds will take 15-20 minutes, tops, this one took an hour and a half (of scanning). After the U/S tech got all of his views of the mass, he left to show the attending radiologist. He came in, to "have a second look", and more and more doctors started to trickle into the room to look at me like a lion in the zoo. Ever see the Grey's Anatomy with the "pregnant" man with the teratoma? It was kind of like that. I was starting to freak out a bit because I was starting to think I had cancer or something. Finally, they decided that I have a large endometrioma (a cyst full of endometriosis) growing inside my abdominal muscle wall, which is quite rare. They think that some endo had been transferred in a previous lap. Usually if endometrial tissue gets transferred surgically, it is direct uterine endometrial implantation during a C-section. So what that means is that I am kind of a medical freak.
So I got back into see my endo specialist about 2 weeks after my hospital trip. She wants more views of the mass, and has me going in for a CT scan this coming Wednesday. The bad news is that this will likely need to be removed surgically, and it can't be done laparoscopically, so it will be a much more diffucult recovery and I will have a big scar. I am hoping that it will be possible for her to remove the mass and laparoscopically remove the typical pelvic endo all in one go. We will have to see what the CT shows on Wednesday.
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i would love to talk to you. email me at jrscott25@gmail.com. my experience is somewhat similar. i would like to know how this was resolved.
I had the same issue except instead of being ill I had the worst pain onset. It was as if I was having another c-section. I went to the ER and they decided it was panniculitis and there was nothing to be done for it. Then 4 months later I spent Mother's Day in the ER again. 2 different ER docs and 2 different cat scans and they both agreed it was definitley this panniculitis thing. They referred me to a suregeon and the surgeon just touched me and knew right away it was and endo mass. I was scheduled for surgery within a few days and he removed part of the mass through a small incision on the bikini line, sort of like a c-section. Recovery was not bad at all. I hope soon to be able to have it all removed but that would be a much more involved surgery and I was looking for pain relief in that moment. I hope all goes well for you and I'm glad you shared your story. thank you Roberta S.
I have been going through the same thing except they did a needle guided biopsy of mine inside my abdominal wall from my cesarean..I have to say the pain is so bad. They said mine is deep in my rectus abdominal muscle. And that will requir major abdominal surgery with reconstruction and mesh and can not carry a baby again :( I would really appriciate any help or answer because I am really sad and lost about it all. I am actually waiting to hear from the surgeon. Thank you
I am currently going thru this as well. I had two vaginal ultrasounds 4 months apart that did not show anything. I was scheduled for a CT Scan which I did about 10 days ago. That showed a 3 cm mass on my abdominal wall. My Dr. has now determined that she is sure it's endometrisis and I am now being scheduled for surgery. NOT laproscopic surgery but one sort of like a c-section. I'm anxious but so ready to not be in pain each month. If anyone wants to discuss my email is jjtincher1021@aol.com
I have been dealing with the pain for just over 5 years. The pain is constant, not just at my period. This past August the pain was so bad I went to the ER where they did a CT scan and found a 2.5 cm mass in my lower left abdominus rectus. A biopsy was scheduled 2 weeks later and came back as endometrial tissue. I was given pain meds and sent to a new funk and a surgeon. After a few consults they decided to give me the Lupron shot to try and shrink the tissue and hopefully give me some pain relief. This has not worked for me although I have read that it has greatly helped other women. My pain is worse and my period is even heavier. The doctors want me to wait 3 month to give the shot time to work before they do surgery to remove it and they can not promise that that will stop the pain. So now I get to play the waiting game.. I just want to be pain free and get back to my life.
I am curious, I had a mass of endo in my abdominal muscle removed about 5 years ago...they could not see it on the ultrasound (literally could feel it but could not see it). Will a ct scan show up better? Now I have pain again, and nothing showing on the ultrasound. I can't 'feel' an actual lump this time, but last time I couldn't feel it until it was the size of a golfball. My doctor thought it was in my abdominal wall, and when she went in and couldn't find it, dug through the muscle to finally find it.
If anyone wants to email me, my email is staceyn3@msn.com. I would love to hear from others who have had this, as my doctor has never seen it before. When I first had this, no one else had posted anything about it online either, I felt like I was a very rare case.
I have been dealing with this for 8 years that lead to a surprise hysterectomy, another surgery a year later (to remove r ovary and fallopian tubes), a colonoscopy, a CT scan two years ago showed nothing, pelvic therapy... list goes on. Finally with pain elevated I pushed for a second CT scan and the mass FINALLY showed. An edometrial mass in my abdominal wall. Surgery is scheduled for 10/24- they may have to rebuild my abdominal wall dependant upon how much they have to cut. To see everyone's post- gave me comfort in a great way knowing I am not alone. For years I felt like and was treated like the pain was "In my head". Beautiful ladies... keep pressing in for answers! Jeni at mjmccreary@cfl.rr.com
Omg.... This us exactly my situation. I have been told its rare too. I have had 2 c secs ans.only started having symptoms 6 mths after my last c sec. I had my golf size lump removed 7 mths ago but have been told I still have a lump. Will need another op. Am taking contraceptive pill to ease symptoms but its making me feel worse due to other problems.... See my consulltant next mth, hoping to get some answers soon xxxx
I went into surgery in 2001 to remove an Endometriosis mass in my abdominal wall, a year after I got the same symptoms and they found another one in the left side of my abdomen. Now, 11 years after, I'm having my 3rd. Endometriosis mass or tumor in my abdominal wall. I'm 45 years old and feeling sad and not ready for another surgery.
Just wondering if there is a procedure to stop having new Endometrosis tumors.
I am absolutely miserable. I was fine a my c section. I required surgery 18 months after my c-section to remove 3 cysts and 5 fibroids. 3 months after that surgery i felt the lump. Initially it only caused me pain around ovulation and with my period. Now its constant, 24/7 pain and discomfort. The surgeon who performed my surgery had no idea what it was. My primary OB/GYN wasn't sure either and suggested I get a MRI. Got the MRI and was sent to see a surgeon who informed me that it was indeed Endometrioma in the Cesarean Scar. However, the surgeon couldn't answer any of my OB/GYN questions: Will the mesh compromise any future pregnancies? I am only 32 (31 at the time) and i want another child. So I began my search for a OB/GYN surgeon who knows about this type of surgery and the affect it will have on any future pregnancies. I have my consultation tomorrow 1/14/14. Its almost been a year that i have been dealing with this and I am over it!I want this thing out yesterday! Its putting pressure on my nerves which causes pain in my side and back. And i have a 2 year old to run behind. Has anyone had a successful surgery? Any recurrences?
I had an ablation at 40 to relieve my heavy periods. Then, a partial hysterectomy at 44 to relieve my pain. My uterus had basically turned to mush and I couldn't poop because it hurt to push. Now a year later I am in pain again. This time I've noticed my blood pressure is rising as I try to deal with the pain. When I touch my abdomen I feel a hardness that wasn't there before. Wondering if it's a mass? Don't want to find out. Not ready for more surgery! Forget the pain, more time off work and expense! Hoping to last til summer to go the doctor.
Hello,
I’m so happy I found your blog because I’ve been searching for women with the same cesarean risk experience as mine! I’m trying to bring awareness to this cesarean preventable risk and connect with women to hear about their experiences. Soon I will have a website in place sharing my stories and the endless research I’ve done that brought me to believe that this condition is overlooked and that there is not enough put in place to prevent it. Because many doctors are not aware of this condition, or simply think is rare which is not, they leave it misdiagnosed for years when the outcome is catastrophic for its victims.
Abdominal wall endometriosis is a preventable risk of any uterine surgery such as a cesarean. I’m trying to bring awareness to this condition so I could make our bad outcomes turn into something positive for other women! I’m an activist and a survivor of this preventable condition. I would love to hear from all of you! You can also join me on Twitter / Facebook @IatrogenicEndo
I look forward to hearing from all of you!
Thank you,
Ana
I just recent was diagnosed with abdominal wall endometriosis as a result of a c-section I had 6 years ago. I discovered the lump 1-2 years after the birth of my son. Was told it was a hernia and to watch it. Wasn't till I ended up on the hospital 3 months that anyone took my pain and discomfort into consideration. I was feeling like I was crazy. Told its a hernia. Its your IBS its you back pain, its ovulation, its its . Until they did an ultrasound and the tech seen the pain I was in during the procedure and the grace of the general surgeon that further testing was done. After ultrasound, CT scan, blood tests, MRI and a ultrasound guided biopsy I was finally told what it was. And now I'm told I have to loose weight. Until then I life with the pain and nausea and the discomfort. The mass had grown from just center of the c-section scar up and diagonally left of my belly. I'm scheduled to have check ups every couple months to check the growth. Currently it is benign. I just wish there was more info out there. Mistyelson@hotmail.com
I also suffer from "abdominal endo" and still in recovery from surgery. My "endo tumor" was pretty large and was embedded in my muscle area. I had to have a large portion of my abdominal muscle removed. Ladies please before your surgery speak to you surgeon and ask him if it will leave a visible indent on the outer abdominal area. I unfortunately now have to fight with my health insurance and hopefully have a plastic surgeon fix my abdominal area because of the big indent that was left in my stomach area. I'm only 35 and very fit so therefore this is a pretty big deal to me
I just had a 2cm endometrioma removed from my abdominal wall a couple of weeks ago. I had a palpable mass near my c-section scar so was referred for an ultrasound. The ultrasound actually showed 2 masses in my abdominal wall, but since the surgeon could only feel the one, that's all he was able to remove and I'll go back to get the other removed when it can be felt. Surgery was my easiest ever! Dr made about a 2 inch incision and excised the mass out of the wall. Stitched me up on the inside and glued me on the outside. I was up and around the next morning and totally off pain killers in a few days.
I landed on your site trying to find more information about this. I don't have any symptoms of endometriosis so was completely shocked by the pathology report. I was sure those masses were something else! My OB suggests birth control to keep new endometriomas from developing. I have the prescription called in - just need to pick it up. I'm hesitant to take hormones, but will if it means no new lumps. I'm in my 40's, have had 2 c-sections with the last one being almost 7 years ago. I didn't feel the lump until a few months ago.
Anyway, I appreciated reading other people's stories here and thought I'd add mine, too.
I just had a biopsy of a mass on my rectus sheath above c section scar. Getting more painful every month. Most likely endo big waiting for results. Maybe if dr's weren't so busy discussing their vacations during my c-section and made sure to rinse out abdominal cavity throughly I wouldn't be here.
out
I am going in to have my abdominal endo excised in a month (along with a hysterectomy). I am curious what the recovery was like from the excision. Was it pretty intense? I have had 4 c-sections and wonder how this compares. Are my abdominal muscles going to be completely shredded?
I am blown away by this blog and everybody's posts...I thought I was the ONLY woman to have experienced such a "rare" growth in my abdominal wall. Obviously not. I had a c-section in 1993 and five years later developed pain in my pelvis with ovulation. Eventually the pain became steady and something I dealt with on a daily basis. My gyne had no idea what was wrong; ultrasounds, C-scans and MRI's showed nothing. I was told it was probably IBS although I knew it wasn't. My gyne finally gave me a referral to a psychiatrist and told me it was in my head. I was devastated and stopped looking for help - I resigned myself to living with the pain on a daily basis. Finally, in 2001 during my annual gyne exam, the mass was big enough for the doctor to feel and he sent me to a surgeon. Within seconds, the surgeon said it was a mass and it needed to be removed. It was diagnosed as a benign endometrioma in my abdominal wall. It was a big surgery, big recovery. I was never able to get pregnant after my first pregnancy and it was at this time that I found out I had endometriosis. Prior to seeing this blog, I had NO idea that the c-section had anything to do with the growth. And I still resent the heck out of being made to feel insane about something that was very, very real!!
Iam 39yrs old and I've had 4 c sections, I was recently diagnosed with a endometrioma mass in my abdominal muscle, I had it removed surgically 3 days ago!! It would cause me intense unbareable pain during my periods. I am now in agony recovering from the surgery which was done by opening my c section scar, I had a surgical drain in for the first 2 days, I'm in severe pain at the surgical site and feel so weak, is all this normal post op? I too had lots of test and I was seen by 3 doctors who diagnosed me wrongly in the last year. It was only by mri scan and needle biopsy that my diagnosis was finally correct. I feel sorry for anyone who has been through this, it's horrible, my mass was 3cm and deeply attached to the muscle, the pain now during recovery is worse then any of my c sections! I wish all who suffer this like me a speedy diagnosis and surgical revovery.
Hi all,
I had a pelvic exam done 3 days ago and my doctor left a message telling me that the pelvic sonogram showed an abnormality in the muscle and that I need to see a surgeon while she thinks about the best MRI testing for me. We knew about the mass, i can feel it, it is above my c section in the right side and it is quite big, feels sort of round. I can feel the presence of the mass and my lower abdomen feels heavy but there is no pain unless I am nearing my menstrual cycle. I had 2 c sections and the last one was done extremely poorly. In any case, while typing this I'm so scarred that this is going to be some cancer news. If you don't mind can you all share the road to diagnosis? What tests were performed to diagnose endometrioma?
Many thanks,
Vesa
Hello ladies!! My experience is the same as you alls. I developed my mass after my second c-section. Initially, the pain wa bearable, but over time it became excruciating and I could not take it any more. The doctors started by sending me to physical therapy telling me I has scar tissue. The physical therapist would often say "I can't seem to break this knot up" as she gives me something like a deep massage. OUCH!! one day she said "I don't think this is scar tissue". Once the doctors realized it wasn't scar tissue, I had a CT scan and an MRI which confirmed that it was endometrioma. I was administered injections to put me in early menopause in hopes to regulate my cycle and stop the mass from going. The treatment failed. I let my mass grow for several months because I did not want to have surgery. My Caesarian recoveries were horrible and I was not up for a similar experience. Nonthless, the pain became unbearable especially during my cycle. I had the mass removed and everything went well. But, guess what? A few years later, there's a possibility that IT'S BACK. I went to the Dr. yesterday and he's almost positive that the Nogale he feels that causing me pain is endometrioma. This time it caused pelvic muscle spasms that lasted for 2 days. It was the worse pain I've ever felt. I'll have a CT scan in a few days and I'll go from three.
Hello ladies!! My experience is the same as you alls. I developed my mass after my second c-section. Initially, the pain wa bearable, but over time it became excruciating and I could not take it any more. The doctors started by sending me to physical therapy telling me I has scar tissue. The physical therapist would often say "I can't seem to break this knot up" as she gives me something like a deep massage. OUCH!! one day she said "I don't think this is scar tissue". Once the doctors realized it wasn't scar tissue, I had a CT scan and an MRI which confirmed that it was endometrioma. I was administered injections to put me in early menopause in hopes to regulate my cycle and stop the mass from going. The treatment failed. I let my mass grow for several months because I did not want to have surgery. My Caesarian recoveries were horrible and I was not up for a similar experience. Nonthless, the pain became unbearable especially during my cycle. I had the mass removed and everything went well. But, guess what? A few years later, there's a possibility that IT'S BACK. I went to the Dr. yesterday and he's almost positive that the Nogale he feels that causing me pain is endometrioma. This time it caused pelvic muscle spasms that lasted for 2 days. It was the worse pain I've ever felt. I'll have a CT scan in a few days and I'll go from three.
I've just had a laparotomy to remove my abdominal wall endometriosis, my GP sent me for urgent ultrasound and blood tests thinking my mass was something more sinister fortunately it wasn't, but I did however have an MRI scan and ultrasound guided biopsy which confirmed endometriosis.
I am recovering from the same surgery. 2 weeks ago had a tennis ball sized endometrioma cut out of my abdominal muscle, both surgeons said it was the biggest they have seen. The recovery has been terrible, so much worse than a c-section!
Did your pain you had during your period disappear after having the surgery? Mines due in a few days and I'm terrified of hating that same pain again even though technically I shouldn't since the mass has been removed
So 2 weeks ago I had a large endometrioma removed from my abdominal muscle, was done via a laparotomy. The recovery has been terrible, way worse than my previous c-sections. Of everyone who has had the same surgery, did it resolve the pain? I'm due for my next period in a few days and I'm so terrified of feeling the same pain that came with my cycle ( even though I technically shouldn't now since the mass has been cut out)
I had endometrial cancer surgically removed three years ago and it came back as a mass in my rectus muscle. Dr did not think it was cancer but I insisted on needle biopsy which showed cancer. After 6 months of chemo pain from tumor was so bad we decided to remove it. Now pain free I am starting six more months of chemo. Had botched c section 21 years ago. Dr is getting tumor genetically profiled as he thinks the cancer may come back again. I am 54. My advice is make sure biopsies are done on tumors to be sure.
I've had C-sections in 1993 and 2003; I developed a 'lump' in the upper right quadrant of my abdomen within 6 months of having partial hysterectomy surgery in 2013. Since having all but my ovaries removed, I always attributed the 'pain' to the fact that I still ovulate. In mid 2016 the pain began happening more than once per month and felt worse (even tender to touch my tummy). My GYN sent me to a Gastro, the Gastro (after ordering a CT scan) immediately sent me to a Surgeon; the Surgeon did a topical ultrasound, ordered an MRI since the CT scan wasn't conclusive, and did a biopsy. The biopsy came back with traces of endometriosis. I had surgery last week and am recovering great ...the area excised was larger than expected but so far so good. My Dr.'s assumption is during the laparoscopic hysterectomy (had that surgery due to fibroids), a strand of endo was left behind and implanted/embedded itself in my abdominal wall near one of the upper abdominal laparoscopic sites.
Hi ladies im in the same boat....had my mass removed last month now having my hysterectomy done....
Hello
After a history of painful, heavy periods and having had an ovary removed,I was diagnosed with endometriosis. Because that my remaining fallopian tube was blocked, the only chance I and my husband had of conceiving was through IVF.
The condition meant that fertility treatment was very painful in spite of the treatment it wasn't successful .
"From the age of 17 or 18, I had very bad periods, but my GP seemed uninterested. At 21, I had emergency surgery for appendicitis and awoke to discover I had also had an ovary removed, due to a large cyst. Although I had a histology (examination with a microscope of tissue removed during surgery), endometriosis (a condition in which endometrial cells, which normally line the uterus, implant around the outside of the uterus and/or ovaries, causing internal bleeding, pain and reduced fertility) was not diagnosed until much later.
With all these challenges, the possibility of getting pregnant was very difficult...I read an article of how Rahany Herbal Center, that helped a woman to conceive with the use of the herbal treatment...I contacted the address rahanyherbalcenter@yahoo.com....I ordered for the herbs and it worked. I conceived through the use of the herbs as instructed also. Contact rahanyherbalcenter@yahoo.com for help.
I am going through this exact situation. Endometriosis in my stomach muscle. The pain is so severe when I go to the ER they try to pin it as PID cause they don't listen either. Im scared! So I got referred to an obgyn that scheduled an MRI. That's how they found it. From a previous c-section. Where it's located I was told was rare too. I am getting this surgery done at university of Michigan due to the severity of it. Surgery has not been scheduled yet.
Yesterday i had an operation for removing 6cm abdominal wall endometriosis... the pain was worse than c section... they put me on morphine cuz the pain was unbearable... today i went into ultrasound my doc saw little bit of liquid on the area where the endometriosis used to sit in.. he suggested me to put lot of ice on the incision area for swelling... im on antibiotics as well... im taking my visanna every single day.. how r u ladies doing?
Hey ya all? How u doing? Its been over 2 weeks since awe removal surgery... im feeling better day by day... still taking visanna once a day... ive developed seroma... we are hoping it will dissapear on its own with time...
Hi there- would love to hear more about your symptoms and recovery. It’s sounds just like what I have been going through. They aren’t sure if my uterus is attached to my abdominal wall with scar tissue from c section or if I have an abdominal wall endometeioma. 😬. Every month I get lower right quadrant stabbing hot burning knife pains. Surgery is next week! Thanks!
Ihave just had an ultrasound showing a mass in my abdominal muscle asewll. Been getting very bad pain worse each month, for last 6 Months. Gynae has put me on Visanne for 6 months, he is doing a follow up scan in 3 months in the hopes that it would have shrunk. I am praying so hard, I don't want to have abdominal surgery. :(
Hello everyone, same issues as everyone else. I feel so much relief just going through these post, regardless to the date of the post. I had called c sections in 2002 and 2006. In 2007 I went to my doctor and he said it was a polyp. It was small so he suggested that since I had a tubal ligation in 2006 , it may shrink. It never did though. Got bigger and painful. I now can see it. It's under my belly button and it's around 4cm. Finally in 2017, the pain got to the point where it feels like im in labor. My obgyn ordered a CT scan . Due for a biopsy this Friday. I'm scheduled for surgery November 7. I'm going to have abdomen surgery and a hysterectomy leaving the ovaries. I'm 36. I'm done having kids but just saddened by having to have such a life changing surgery
Hi had an endo mass removed yesterday as a result of a c section almost 4 yrs ago had suffered with severe pain for roughly 3 years tender to touch and a burning stinging sensation from within worsening when I was on my period.surgeon said mass was roughly 3cm she removed it in sections and as it had attached to my abdominal wall she used a laser to remove last pieces to save cutting my abdominal wall. Mass has been sent to labs 4 tests. I was discharged last nite and have to get staples removed next wk thankfully scarring will b minimal as they opened me on my c section wound I have 4 clips on . Have to return to consultant in 6wks. Pain is very slight thankfully. Relieved to finally have mass removed. Hope this helps you and that your surgery goes well
Hey Ladies, I have been searching and searching for something on this condition, and am SO relieved to come across this and read these. I feel less like medical phenomenon now lol - I go for removal of 3cm mass in abdominal wall, full hysterectomy (keeping an ovary) and maybe bowel resection, depending on what they find. I’m tough as nails but definitely nervous about what the future holds after surgery. I was curious to know how others have recovered and if they have had issues with mesh implants if they had them? I feel like I have a million questions but the internet doesn’t have answers, which in 2018 is kinda weird and makes me feel uneasy. That said, glad I found this blog post!
I had a unknown mass which they found to be endometriosis?, ended up being 4cmx3cmx1ish cm... Had sonogram and CT showed a vascularized mass ill defined borders. The mass was visibile from the outside and was firm hard immovable and sometimes tender upon palpation other wise nothing. It was located in my groin area, originally they thought lymph involvement... It gradually grew bigger over the course of 1.5 years, never got smaller in size just bigger... They didn't know what it was, then had it biopised last week and now they inform me it is endometriosis... However when researching this and posts above... It tends to be related to scar tissue and major surgeries like c-section .... Which I've never had either. I also never had any of the symptoms or risk factors for endometriosis according to "Google", only one was that my sister had it-but she also had c sections.... Anyone else have this abdominal wall endometriosis and it NOT be related to any c-section or prior surgeries?
Wow, I am relieved to have found this thread. I have been searching for answers for almost 3 years! I was just diangnosed with AWE and see a general surgeon next week. Little of my history: Im 37. I had a vaginal birth in 2001. C-section in 2010 and 2011 along with tubal ligation. 4 years later I started having heavy bleeding and severe pain. I at first thought I pulled a abdominal muscle. But the pain came back every month during my menstrual. Lasting 5 to 14 days. I even went to ER and they couldnt find anything wrong. So after a few months, I went to my dr. An ultrasound was done, only a cyst was found. Then went to OBGYN. He suspected adenomyosis. Put an IUD in which was a horrible experience. Had it removed. I finally had a hysterectomy in June 2017, kept ovaries. Well my pain continued every month like clockwork. Finally went back to OBGYN a couple weeks ago. He felt the lump in my lower left abdomen, just above csection scar. He suspected endometriosis in my abdominal wall. I had another ultrasound done last week and it was confirmed today thats what it is. I now go see a surgeon. Im curious what the recovery time is and if its comparable to csections or hysterectomy surgery? Just not enough information in this. I find it amusing that its rare but it seems to be coming a more common issue.
It is such a relief for me to find so many women experiencing what I have been going through. I started experiencing pain in my lower right abdomen around 4 years ago, 3 years after having a c-section with my youngest daughter. I mentioned to my doctor several times and it was just brushed off at first as just normal pain occuring from my monthly cycle. As it got worse the doctor thought maybe it was a hernia...at some point I could feel a lump but only while standing up and it was more evidence during my cycle. I was desperate for answers and my doctor referred me to a surgeon for imagining, still believing it was a hernia. He ordered an ultrasound and MRI and it showed that I did not have a hernia. The report stated a possible demoid tumor, they really didn't know what it was, but it was not a hernia. I have searched and researched and have found very little information about these. One article I read did mention the tumor having some effect on hormones. I wondered if anyone here has experienced hormonal issues with their tumor. I feel mine has really messed with my hormones and has been the cause of excesssive weight gain. I am hoping to have surgery soon to remove it although some of the posts here mention how painful it will be. I assumed it would be a simple procedure as easy as having a tooth pulled, now I'm a little hesitant to rush the surgery.
Hi, your stories sound just like mine except I am told, "The surgeon removed a fatty tissue in my abdomen that was larger than his fists" like it's no big deal. And as all of you I too have had several abdominal/pelvic surgeries due to injuries and female issues. At the age of 46 I was in an awful motorcycle accident that fractured my left ankle (had two surgeries on it) an open head injury with a post concussion. It was maybe 6 weeks after the accident when I noticed several changes with my health such as; heart palpitations, sweating, right side of my body would get hot, right side of my body would swell (only right cheek, breast, foot, toes), changes in my skin, weight gain, nausea with vomiting, urq pain, back pain, gassy, irregular bowel movements. I was told menopause (at age 46?), caused from my head injury, or medications will do that. Of course, I mentioned these symptoms to my doctor's while tending to my other injuries. This went on for 6 years while I watched my body completely change, my abdomen was in constant pain and utterly distended. I had to wrap a belt as tight as I could just up under my rib cage otherwise I was unable to sit upright. About a year 1/2 before my surgery they said I had a hernia but as long as I could push it back inward, "It was fine". And yes, I had all the cat scans, gall bladder scans, x-rays, ultra sounds never seeing any mass. Finally a hernia surgeon said he'd open me up and fix it. I told him that he would find something more than this belly button hernia as he was dismissing my opinion and to his dismay; this 20 minute hernia surgery turned into a 2 1/2 hour abdominal surgery removing, "a large fatty tissue that was attached inside my right abdomen and it was bigger than his fists. And I was sent home and cured. But six weeks later I had never felt so nauseous, vomiting, sick sour taste, horrible pressure in my upper chest that I am now on medication for acid reflex. My surgery was April, 2018 and I know my right abdomen is either making another "large fatty tissue" or they left some behind because every single symptom I had is coming back in the same sequence as before and naturally every same scan is producing their is nothing there. So here I am having to recline as far back as I can while I type this, I'm constantly pressing on that same spot in my abdomen, my nausea is chronic, my stools are abnormal, I feel fluttering and pulsating inside my stomach along with my aches and pains from my broken bones. Any suggestions to whom I should see? Sjules40 at yahoo for the doctor is sending me for a colonoscopy.
I’m a “rare” case too. I have surgery scheduled for Dec 5th. With three dr. I think they are more intrigued by me and having never done this surgery. I had the worse experience my one and only c-section. So much I do not want to have anymore children. I’m terrified about this surgery. Should I even have it? I’ve chosen not to have anymore kids just so I don’t have to have that experience again. Now I’m having to make this decision just so I’m not in pain. I can’t do any abdominal exercises. It makes me physically ill. Almost to where I pass out. I’m at a loss what to do. I’m so glad I found this thread. All the doctors that I’ve seen don’t know what to do with me. I even had one say well it’s not cancer so now I don’t know who to send you to. And showed me the door.
Am pela, thanks to Dr Osaze who cured me of fallopian tube blockage and fibroid with his herbal tuber cleanser. My marriage was on the verge of collapsing, because I was unable to bear a child for my husband. Until I came across Dr osaze's recommendation on line, and I contacted him. And he administered his herbs on me. I now have a child I can call my own. In case you want to contact him for a similar problem, or all other issues, you can reach him through his email:
drosaze39@gmail.com or call him on +2347089275769
Hi Everyone, I'm Zelda from South Africa! My story is very similar except I feel that there was some medical negligence in my case. I had natural birth with my 2 daughters and then decided I would become a surrogate mother so in 2010 I gave birth to triplets via C-Sections, then a little girl in 2012 (via C-Section) and once again a little boy in 2015 (via-C Section)
I had no problems at all until the last C-Section in 2015. I have been from one specialist to the next, I've had gastroscopies, colonoscopies, Laparoscopies. I was told that because the intense pain was on the lower right hand side of my abdomen, it must be my appendix, so in 2016 my appendix was removed. The pain was still there.
I had a CT scan in 2017 where they did pick up some sort of fibroids / tumors but the report from the CT scan stated that I needed further gynaecological assessment. So I went and saw a gynae. He immediately said that I need a hysterectomy, so the next thing I know I'm back in theatre to have my uterus removed. After the hysterectomy the same pain was still there. My hair started to fall out, I started gaining weight for no reason and all the while the same intense pain hung around. I wanted to give up on life.
I even went to see an Endocrinologist in Thailand as I had lost all faith in doctors in S.A.
The doctor in Thailand picked up that I had an underactive thyroid, vitamin D deficiency and low cortisol levels. She immediately started treating those symptoms but had no answers for me regarding the pain in my abdomen. So when I returned to SA I went back to the same surgeon who removed my appendix. He did a physical exam, and could feel that there was something there that shouldn't be there. I went for another CT scan 2 weeks ago and it showed to large tumors in my abdominal muscles. I was booked for surgery on 31st July 2019. I had my follow up appointment yesterday after the surgery and my surgeon told me that he had never seen anything like these tumors before. Endometriosis attaching itself to abdominal muscles, so he ended up removing the majority of my left abdominal muscles and some on the right side. He also mentioned that one of the doctors who did previously surgeries on me probably inserted a drainage pipe and must have pushed it through the abdominal muscles for it to start the endometriosis growing in the abdominal muscles, so to me this spells "MEDICAL NEGLIGENCE".... I'm going to further investigate this.
I was a fit, healthy person! I gave 3 other couples children via C section and now my body is not my own anymore. I feel trapped in a body that's not mine. My health has suffered tremendously over the past 4 years and the saddest part is that nobody warns you about the side effects of being a surrogate.
7 children later (only 2 are my own) and endless medical problems.
I'm just grateful that my surgeon found the problem because it was getting so bad that I thought I was going to die.
I'm investigating further to find out if a drainage pipe could really be the cause of this and if that's the case then the doctor who did my hysterectomy is probably the guilty party. Drainage is not supposed to go anywhere near your abdominal muscles no matter what surgery they do on you.
If you'd like to chat, you are more than welcome to contact me on my email address: zeldastevens74@gmail.com
Good Luck to all of you who are going through the same thing. God bless!
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