Tomorrow, Monday March 2 2009 is Yellow Shirt Day 2009. What is Yellow Shirt Day? It is an international effort to draw awareness about endo, give accurate information to the public and medical community, show support for your loved ones who suffer from the disease and to find a cure. It is absolutely unacceptable that the average woman with endo suffers for 9 YEARS before an accurate diagnosis is made. For a disease that affects an estimated 5-10% of cycling women, even 9 weeks is an unacceptable diagnosis delay. It shouldn't be that hard.
My other biggest peeve is that about 98% of gyns have absolutely no idea how to treat endo. They laser or cauterize the few lesions they can recognize and balk at you and prescribe even more hormones when you are back in pain 1 month later because they didn't remove all of the disease.
***To all the doctors out there and all current and future endo patients: Endometriosis can only be diagnosed with an EXCISION and a BIOPSY of the disease. Laser and cautery do not allow for biopsy, nor do they destroy the entire lesion, just the surface which leaves the "roots" in tact. Hence the disease is not treated. Lupron and Danazol are clearly not the answer. Sampson's theory is the biggest load of bullshit I have ever heard. Hysterectomy and pregnancy are not cures nor viable "treatments". Cramps and menstrual pain are not normal. They are common, but so is type II diabetes. Common and normal are two very different things. If you know something is wrong and doctors keep brushing you off, don't give up! There are endo specialists out there who can help you without injecting you with scary hormones or pressuring you into a hysterectomy that you don't need and won't help. Don't give up!***
OK, I am done ranting for now. I have a bit of passion on the subject :)
I am wearing yellow tomorrow. The question is, are you?
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