Long Overdue Update

Another big delay in updating, I am sorry :( I know. Recovery over the last month has been slow going to say the least. I have been incredibly fatigued and not sleeping well at all. For example I have slept about 8 hours in the past week. Yikes! I have also been having sharp shooting pelvic pains in the morning from about 5am-8am. Yesterday I suddenly had severe cramps for no apparent reason and nearly passed out at a gas station. Yes, the last 6 weeks have been pretty hard on me. I try not to complain and just get on with it, but it is hard. I certainly wasn't expecting to be needing to take Percocet 6 weeks or so post op or prescription sleeping pills just to get a few hours of sleep.

I saw my endo specialist last week, and she said it is normal to experience a lot of fatigue and shooting pains or a while after such a big surgery. She said to keep taking it easy and allow myself to heal. Pushing myself too hard will just slow healing down and will do more harm than good. The biopsies all ended up being endo, which was no surprise.

I have also enrolled in a genetic endometriosis study. All it involves is a phone interview, your operative and biopsy reports and a saliva sample. If you have been surgically diagnosed with endometriosis, check out this link: http://www.endtoendo.com/End_to_Endo/Endometriosis_Research_Study_End_to_Endometriosis.html
You never know, a little of your spit might go a long way in helping medicine treat endo more effectively, or better yet cure it! I have also been ruthlessly editing the wiki article on endo, lol and raising some very interesting points about Sampson's theory and general medical attitudes of doctors in the forums at www.obgyn.net. Another study I found of interest found biopsy confirmed endo in 4/36 female fetuses at necropsy. http://www.ncbi.nlm.nih.gov/pubmed/19358700?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

I have been on a bit of an endo awareness/accuracy kick lately. I go through my spurts of generalized frustration and disgust on how little doctors know about endo even though the information is there, and how ALL the MANY MANY myths continue to circulate.

Many pain free days! xox